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About IBD
Government Documents
Healthcare Professional Organisations
IBD Clinical Guidance
IBD Data Collection and Electronic Records
IBD Patient Organisations
IBD Service Development
About IBD
IBD Patient Surveys and Reports from NACC
NACC has conducted various research, surveys and focus groups. The reports from these are available from the NACC website together with details of NACC services and the support the charity can provide to hospitals.
IBD Research
Unravelling the mystery of Inflammatory Bowel Disease (NACC, 2007)
BSPGHAN - Guide for purchasers of Paediatric Services
Guide for purchasers of Paediatric Gastroenterology, Hepatology and Nutrition Services. BSPGHAN (2003)
Government Documents
England - High Quality Care for All
Department of Health: High Quality Care for All - NHS Next Stage Review Final Report (2008)
England - Our vision for primary and community care.
Department of Health: NHS Next Stage Review - Our vision for primary and community care (2008)
England - Long-term Conditions National Service Framework
Department of Health: Long-term Conditions National Service Framework (2005)
England - National Service Framework for Children, Young People and Maternity Services.
Department of Health. Transition: Getting it right for young people. National Service Framework for Children, Young People and Maternity Services. 2006
England - National Service Framework for Children, Young People and Maternity Services.
Department of Health.Transition: Getting it right for young people. National Service Framework for Children, Young People and Maternity Services (2006).
Scotland - Better Health, Better Care.
NHS Scotland: Better Health, Better Care: A discussion document (2007)
Wales - Designed for Life
Welsh Assembly Government: designed for Life: Creating world class Health and Social Care for Wales in the 21st Century (2005)
Northern Ireland - Developing Better Services
Department of Health, Social Services and Public Safety (Northern Ireland): Developing Better Services (2002)
Healthcare Professional Organisations
ACPGBI - Association of Coloproctology of Great Britain and Ireland
BDA - British Dietetic Association
BSG - British Society of Gastroenterology
RCN - Royal College of Nursing
RCN Crohn's and Colitis Special Interest Group
BSGAR - British Society of Gastrointestinal and Abdominal Radiology
BAPEN - British Association for Parenteral and Enteral Nutrition
BSPGHAN - British Society for Paediatric Gastroenterology, Hepatology and Nutrition
ECCO - European Crohn's and Colitis Organisation
UKCPA - UK Clinical Pharmacy Association
PCSG - Primary Care Society for Gastroenterology
IBD Clinical Guidance
PCSG - Care of gastrointestinal disorders outside hospital
The Care of Gastrointestinal Disorders outside hospital. PCSG - Primary Care Society for Gastroenterology (2006)
ACPGBI - Management of acute severe colitis
Position statement on the management of acute severe colitis (in press)
BSG - IBD guidelines
IBD Guidelines (2004) [updated version expected Summer 2009]
BSPGHAN - Management of paediatric inflammatory bowel disease
Guidelines on the management of paediatric inflammatory bowel disease (October 2008)
ECCO - UC and Crohn's
Guidelines on Ulcerative Colitis and Crohn's Disease
IBD Data Collection and Electronic Records
IBD Audit 2006 Report
IBD Audit 2008 Results (due March 2009)
ACPGBI - Ileal Pouch Database
Association of Coloproctology of Great Britain and Ireland Ileal Pouch Database
NHS - Electronic care records for IBD patients
Do once and share: Requirements for an Electronic Care Record for IBD patients
IBD Patient Organisations
NACC - The National Association for Colitis and Crohn’s Disease
CICRA - Crohn’s in Childhood Research Association
IA - The Ileostomy and Internal Pouch Support Group
EFCCA - The European Federation of Ulcerative Colitis and Crohn’s Associations
CCFA - Crohn's an Colitis Foundation of America
CCFC - Crohn's and Colitis Foundation of Canada
IBD Service Development
IBD Audit Action Plan
The Action Plan toolkit contains examples of protocols, job descriptions and good practice from IBD Teams around the UK. All of the documents have been provided on the basis that they can be adapted and used by other IBD Teams.
IBD - Transition from paediatric to adult care
Inflammatory Bowel Disease - Transition to Adult Health Care: Guidance for health professionals. NACC, CICRA (2008)
IMAGE Project
Management of GI Diseases in Primary Care
BSG - Care of patients with gastro intestinal disorders
A strategy for the future (2006)
RCN - Roles descriptives for IBD Nurse Specialists
Roles Descriptives for Inflammatory Bowel Disease Nurse Specialists: RCN Guidance. RCN Crohn’s and Colitis Special Interest Group (2007)
NACC - Involvement of IBD patients
Involvement of IBD Patients in Service Development. NACC (2007)
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